Happy Belated Birthday to Crew

Crew is now one year old. It has been a busy and adventurous year. We counted the other day: he has spent 28 days in the hospital during his first year (not including outpatient visits or doctor appointments). He had four surgeries. He now has a working palate in his mouth. He is able to breathe easily and safely. He still eats using a g-button but he is thriving and growing and is off the charts for height. He has been through a lot. Not only have his medical milestones been important, but so have the "normal" ones. This year he learned to roll over, sit up and crawl. He says "mama" and other unidentifiable jabbering. He can give kisses and likes to bonk you on the forehead with his own. Sometimes he gets confused as to which game involves kissing and which one involves bonking. He can stand for about 7 seconds unsupported. He smiles and laughs. He loves to cuddle. He plays with Mia. He gets mad at the dog when she gets in his face. He is a joy.

Isn't he handsome? We love you, Crew.