Crew was born September 25th just before 8:00 am. He weighed 9.04 and was measured at 21 1/4 inches. We have had a little bit of a rough beginning. Crew has a medical condition known as Pierre Robin Sequence. Basically he has a cleft palate (not a cleft lip) and a extra small jaw which makes it so his tongue is placed too far back in his mouth so he has trouble breathing/eating. Natalie is home from the hospital now. Crew is still in the NICU at Medical City hospital - he was transferred a couple of days ago. Tomorrow (Thursday) he will undergo surgery to attach his tongue to his lower lip (probably for about 9 months) so we can stop worrying about his tongue falling back into his throat. He'll be able to suck and eat like any normal baby and we will be able to put him on his back and treat him like a normal baby without worrying about his airways or having him constantly on a monitor. They'll separate the tongue and lip at the same time that they fix his cleft palate which they will do at about 9 months of age. Babies grow so quickly that his jaw should be big enough in that 9 months to accommodate his tongue, alleviating the danger of suffocation.
He is a happy, sweet baby and such a joy for us. We're just sad to have to leave him in the hospital and we're sad that Mia hasn't officially met him yet. She did get to see him through the glass and is starting to understand a little bit who "Baby Crew" is. I can't wait for him to come home so she can be a big sister.
Please keep little Crew in your prayers.
22 comments:
He is such a cutie. Thank you for sharing your pictures with us. I cant wait to meet him in person. You are all in our prayers, as I often find myself thinking of you and your family, and how you are all coping. I have tried not to overwhelm you all with too many calls but I want you to know I am here for you for anything. I love you all!
CONGRATULATIONS!!!! YAY!!
And OF COURSE, Crew (what a cute name by the way) will be in our prayers. So will you and Shaun and the Dr.'s who are taking care of him!
We love you Nat. I'm so happy for you to have him here!!
CONGRATULATIONS!!!! YAY!!
And OF COURSE, Crew (what a cute name by the way) will be in our prayers. So will you and Shaun and the Dr.'s who are taking care of him!
We love you Nat. I'm so happy for you to have him here!!
Hey you guys...I'm amazed at medical science today and so happy that he is having the surgery he needs. I'm praying that everything will go well for all of you. You seem to be taking everything in stride, so keep it up!
Love you tons,
Jan
Welcome, Crew! He is adorable! Sorry to hear about all his troubles. Thank goodness for modern medicine. We will keep him in our prayers!
I have been thinking of you and praying for you so much! He is so sweet! Hang in there. Lots of love.
Welcome to the world baby Crew. This body business is tough sometimes but you'll get the hang of it. Hang in there mom and dad. Congratulations to your little family.
We fasted for Crew on Sunday and remember to pray for him every day! I bet you have been really worried! You just don't know what trials are going to hit you until they do. Maybe it's better that way!
love,
Tracy
Shawn and Nat- We are so happy to hear that things are progressing. We have been so worried about you all. We are praying for you and thinking of you all. Love you!
Laura
Oh he's priceless! What a special little guy. What a unique challenge you have, however he couldn't have been blessed with greater parents...he came to two of the best. I am keeping you all in my prayers. Love ya!
Wow Shawn is lookking so Fine these days. Wow. I mean he looks really good. The baby is cute but shawn, Wow.
I said it before, but I must say it again, he's adorable! What great skin! We're praying for you. He's a special little boy who Heavenly Father knew would be so very loved and well cared for by you. I couldn't think of anyone better qualified. Love ya!
Congrats!! You are all in our prayers! We love you and miss you! We hope we get to meet Crew soon!
Nat-
congrats. I hope things go fast with the healing and what cutie!
Rachel
You guys are such a great family and we loved the sweet pictures of Crew! I hope all things are going well. We loved having Mia over and would love to have her here again...soon. You are in our prayers.
Congratulations! Crew is such a cute baby! I'm so glad to hear that things will turn out fine and grateful for knowledgeable doctors and modern medicine. We've been praying for you guys.
He's already got the chubby cheeks!! He is precious! And Shawn, you finally got your little Crew! The Kerr's down in Waco are thinking and praying for your little family. Maybe we'll see y'all around the holidays when we come visit my family?? Take care, guys, and enjoy that sweet baby boy!
Such a sweet baby, blessed to be born to a strong family in a day and age of medical miracles.
Please know that you're in our thoughts and prayers.
You guys, he's fantastic! What a love! You have been in our thoughts and prayers since he was born, I hope that all goes as planned!
Michael & Rachael Walker
What a doll! I can't wait to meet the little guy. You have been in our prayers! We want to have Mia come play!
Baby Crew is a month old today- what a long road with lots a blessings too. Just wanted you to know that I've been desprately hoping I could give you all a long distance hug today. Love you so, so much.
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